#FridayReads – The Curious Incident of the Dog in the Night by Mark Haddon

I have not read this book before. It is the book that my book club voted to read this month. The meeting is on Sunday and I still have like 100 pages to read! Which shouldn’t take me that long. I hope.

But so far it’s a very interesting book wrote from a completely different kind of voice that I haven’t seen before. It’s pretty interesting.


What form of IBD do you have?

On paper I have Ulcerative Colitis but my doctor has mentioned a couple of times that I probably have Inderterminate Colitis. So that’s pretty much what I identify as. There also isn’t a Inderterminate Colitis diagnostic code so that doesn’t help either. There was also that one time I had a pathology report come back and say Crohn’s Disease 🤷‍♀️ And the Humira is currently working fairly well and there is mucosal healing in my colon and rectum, so it’s hard to say for sure which IBD I have.

But at the same time there is a lot of speculation in the GI field that IBD is a spectrum disease. The most important thing is that I like my GI doctor, the medications are working and we know where my disease is most active.

Why is IBD advocacy so important?

So people know that they are not alone. Having a chronic disease can feel so isolating when you are first diagnosed. It is so helpful to meet people who know what you’re going through. And can help you navigate a very hard time in your life.

Describe a socially awkward moment with IBD.

Oh where to begin?

There was this one time on Facebook that I got told that I needed to read the healing word of God and pray more to cure myself.

Which was extremely frustrating because I’m not an avid Christian (I’m more or less agnostic) and my faith has nothing to do with my illness. Shit happens and I somehow got this incurable disease through no fault of my own. And praying to God to get healed isn’t going to cure me. Some scientist some day will find a cure and that will be what I need. Will it be through delivine intervetion? Who knows!

But telling someone that they need to read the bible more and pray more just blames the person who got ill and victimizes them. People who are chronically ill need compassion and empathy. Not someone to tell them where they went wrong in life.

What common stigma do you run into?

That it’s not that serious of a disease. That it just makes you poop. That it’s just a stomach ache and some diarrhea. That I don’t look sick.

All of these stigmas are so incredibly frustrating. There are people who have died from complications of this disease. IBD is so much more than pooping and a stomach ache. And I don’t look sick because I’m good at faking being well. And it’s my colon and rectum that are affected, not my face.

These stigmas are just a few of the very important reasons we need to raise awareness for IBD.

What do you want other people to know about IBD?

So many things.

That at times it is a hard disease to live with. But along the way you will meet some pretty incredible people who will become some of your best friends who will be there for you no matter what. If you are able I highly recommend going to a retreat for people with IBD. It will be an amazing experience for you and you won’t regret it.

That this disease affects me in so many ways. And just because I don’t look sick, doesn’t mean that I’m well.

The more I work and the more I do the more tired I get. But it’s not the same type of tired as everyone else. I fight my body every single day. It’s exhausting.

Until next time!

Autoimmune Protocol Diet: Week One

Today marks my seventh day on the Autoimmune Protocol Diet(AIP).  For those of you who don’t know, the AIP diet is a restricted version of the Paleo diet. The purpose of this diet is to take immune responsive(or potentially responsive) foods out of your diet and try to get your autoimmune diseases into remission. Here are the different foods I am not eating or drinking while I am in the elimination phase:

  • Grains20180316_2120521404242470.jpg
  • Alcohol Legumes
  • Nightshades
  • Dairy
  • Caffeine
  • Dairy
  • Food additives
  • Refined/Processed Sugars
  • Eggs
  • Refined/Processed Oils
  • Nuts
  • Seeds
  • Fruit and Berry Based Spices

I’m slowly processing all of this food out, and I will be for the next few weeks. Once I complete eliminating all of these foods I will stay in the elimination phase for at least 30 days and I can take that time out longer if I feel I need too. After the elimination phase I will start to reintroduce foods back in to see if I have any reactions to them.

So far this first week was hard. I felt awful on Monday night after not having any simple carbs for a couple of days. I had a headache and a very upset stomach. I was very hungry al20180316_212011792435822.jpgl week so I was carrying around snacks like clementine’s and beef jerky I made at home. I’m slowly not feeling so very hungry all the time as the week goes on. I’m looking into different “fat bombs” that I can make to help with this diet and the whole process.

The beef jerky was ok, it’s going to be a learning process with smoking my own jerky but I look forward to the process. I have yet to make any bone broth, but I plan on doing that soon. I bought some at the store this week and it actually had a hole in it! I was thawing it in a bowl of water and lost all of my bone broth! It was so frustrating.

I did try some new stuff this week. I made an arugula salad with fennel and grapefruit with a lemon vinaigrette. It was actually pretty good. I wrote up a meal plan for the week to try and keep myself on track. It helped out quite a bit and I didn’t hold myself rigid to this schedule. I allowed stuff to be moved around if needed.

Another thing I’m doing is keeping a symptom journal. I want to know if the new diet is helping and if I have any reactions to new foods I’m eating. So far the worst thing with this diet is the hunger and the lethargy. I foresee that going away as my body gets used to this new diet. It’s used to having a lot of potatoes!

My goal with this diet is to help me feel better. I’m doing well on my medications. My bloodwork is coming back great and I have mucosal healing in my bowels as of Oct 2016, but most of the time I still don’t feel like I’m 100% well. My rheumatologist believes that there is inflammation going on in my body that science just isn’t good enough to see yet. But no one wants to put me on anymore medications. So what I have left is diet. I haven’t really given a diet a go since I was diagnosed with a fructose malabsorption. I figured it’s worth a shot.

Until next time!


This week I am reading The Way of Kings by Brandon Sanderson. I haven’t gotten too fsr into the book yet, but it is shaping up to be pretty interesting. Currently on page 83 of 1039!

Regaining My Balance

The last 6 weeks or so have been pretty rough for me. Between going through a very tough day at work and then working 12 days in a row two different times in the last month. And then getting sick and having to go out of town for work.

I’m struggling to get myself back on track. I’ve been wanting to do Yoga more to help out with the weight loss but with working so much and getting sick I’ve had a hard time keeping up with it. I’ve also been wanting to try a new diet and I’ve had to put that off for several weeks unfortunately.

Hopefully work will slow down so I can get my life back on track. My house is a disaster and I’ve been too tired to do much. But this weekend I’ve finally been able to start getting myself straightened out. I got part of my kitchen cleaned. I also started the AIP diet today. I’ve been wanting to start this diet for a month or two, so I’m pretty excited to see how it goes!

All in all, I have to remember that this is going to be a process and that I need to take life a day at a time.