I got a letter from my GI practice letting me know that my pathology labs are back and that I have active colitis. Well no shit, Sherlock. We discussed that after my colonoscopy. What I want to know is whether I have UC or Crohn’s. Hopefully I’ll find out what the pathology report actually said when I go and get my second opinion. I don’t see my normal GI doc until the 19th.
I know that there’s probably reasons why they don’t put whether you have UC or Crohn’s in a letter in the mail. But at the same I just want to know what’s wrong with me already. They did get the paperwork sent off to a company that’s supposed to get the approval needed from my insurance company to start Cimzia. Fingers crossed that it all goes well.
My symptoms have calmed down over the last couple of days. I do find that odd since my inflammation is pretty severe. But maybe that’s normal? I just thought that if I have severe inflammation that my symptoms would be pretty severe. Like they were the week I had Thai food(never again!). But then again, before my colonoscopy in December and the Lialda episode, I had constipation with active inflammation which isn’t normal. So maybe I’m just a weird outlier when it comes to IBD.
I’m sure some people may think I’m too worried about labeling what’s wrong with me. But there’s a pretty big difference between Crohn’s and UC. I just want to know what to expect for the rest of my life.
“She said, ‘Some days I feel like shit. Some days I wanna quit, and just be normal for a bit.'” ~ Fort Minor