When I saw Dr. M last Monday we ended up talking about medications. I had mentioned to him what I’ve had bad reactions to in the past(Lialda and Imuran) and he mentioned that there were a lot of new medications coming out for IBD. The only one that I was aware of that recently came out was Vedolizumab(Entyvio). He said that he felt that medication was unacceptable because it can cause Progressive Multifocal Leukoencephalopathy(PML) which is a potentially fatal brain infection.
I don’t necessarily trust the FDA to always be able to draw these lines. So we’re going to have to be able to determine this ourselves or our doctors will. So, where do we draw the line? When do we say that these side effects are too dangerous?