Autoimmune Protocol Diet: Week Three

Hello everyone.

This update is going to be a bit different. Because I had to stop the Autoimmune Protocol Diet unfortunately. My bowels this week pretty much had it. With this diet I was eating a lot of veggies and my colitis is currently not happy with that.

So Thursday I ended up having to take a sick day over this. I felt like my colon was in a vice grip and I had been having bowel issues for a couple of days so I just decided to stay home. I’m tired of making myself go to work when I don’t feel well. I also hadn’t been sleeping well due to joint pain. And Thursday was the day I decided I needed to get off of the AIP diet.

Now the plan is to try and redo the AIP diet in a couple of weeks. I feel like I need to do some soul searching and revisit the whole thing. It may mean introducing some OTC fiber tablets to my diet to help keep things regular. Or even slower diet changes.

But I felt that quitting the diet was the best option for me at this time. Going into a flare is not worth it. And I really feel that I was heading in that direction. My bowels were really starting to get torn up. In a way going back to my regular diet is going to be a test to see how that compares to what I was doing.

Until next time!
KenzieIBD

Autoimmune Protocol Diet: Week Two

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Mug cake/brownie I made Friday night. It wasn’t too bad. A little dry for my taste. Next time I’m going to try cooking it in my microwave a shorter amount of time. I got the  recipe from Don’t Eat the Spatula.

Today marks my 14th day on the AIP diet. This diet has not been the easiest diet in the world. Some days are harder than others. What really makes it hard for me is the fact that I have to take my fructose malabsorption into account. And to take that into account that means I have to double check everything on ingredients lists for the AIP diet and compare them to the FODMAP list of foods I can and cannot eat.

I also really like potatoes, and dairy and gluten type foods. It’s been hard to cut them out. So far I’ve cut the gluten out and the night shades. I have not succeeded with the dairy quite yet. It’s probably going to be the hardest thing for me to cut out.

Over the last two weeks I’ve noticed that my joints are doing better. I don’t wake up with them as achy as I used too. My bowels on the other hand I’m not so sure on. I’ve had some weird stuff going on the last couple of weeks on and off. So we will just have to wait and see what happens with that.

One thing I learned this week is that I need to check my recipes in the morning to see what needs marinated for the evening meal. This would help with not eating so late in the day. Some nights this week I was eating dinner around 9pm. Which we all know isn’t the best thing for you.

I did not do as much Yoga this week as I had hoped to do. Kinda forgot about it until Tuesday night. And by the time I remembered it that day was a bit late to be doing Yoga. If I’m too active in the evenings(like working out) I’ve noticed that I have a hard time falling asleep. Which is another thing I need to work on anyway.

Another thing I had a hard lesson on this week was to make sure I eat lunch! Before going on the AIP diet I would quite often work through lunch and not eat anything until I got home. I did that on Friday and it was a huge mistake. I was so hungry when I got home and I was ready to throw the whole diet thing out the window and eat whatever I wanted too.

Hopefully next week goes better. But it’s currently Friday night and I have yet to do any meal planning for next week. Oops.

Until next time!

KenzieIBD

#IBDAdvocacyTag

What form of IBD do you have?

On paper I have Ulcerative Colitis but my doctor has mentioned a couple of times that I probably have Inderterminate Colitis. So that’s pretty much what I identify as. There also isn’t a Inderterminate Colitis diagnostic code so that doesn’t help either. There was also that one time I had a pathology report come back and say Crohn’s Disease 🤷‍♀️ And the Humira is currently working fairly well and there is mucosal healing in my colon and rectum, so it’s hard to say for sure which IBD I have.

But at the same time there is a lot of speculation in the GI field that IBD is a spectrum disease. The most important thing is that I like my GI doctor, the medications are working and we know where my disease is most active.

Why is IBD advocacy so important?

So people know that they are not alone. Having a chronic disease can feel so isolating when you are first diagnosed. It is so helpful to meet people who know what you’re going through. And can help you navigate a very hard time in your life.

Describe a socially awkward moment with IBD.

Oh where to begin?

There was this one time on Facebook that I got told that I needed to read the healing word of God and pray more to cure myself.

Which was extremely frustrating because I’m not an avid Christian (I’m more or less agnostic) and my faith has nothing to do with my illness. Shit happens and I somehow got this incurable disease through no fault of my own. And praying to God to get healed isn’t going to cure me. Some scientist some day will find a cure and that will be what I need. Will it be through delivine intervetion? Who knows!

But telling someone that they need to read the bible more and pray more just blames the person who got ill and victimizes them. People who are chronically ill need compassion and empathy. Not someone to tell them where they went wrong in life.

What common stigma do you run into?

That it’s not that serious of a disease. That it just makes you poop. That it’s just a stomach ache and some diarrhea. That I don’t look sick.

All of these stigmas are so incredibly frustrating. There are people who have died from complications of this disease. IBD is so much more than pooping and a stomach ache. And I don’t look sick because I’m good at faking being well. And it’s my colon and rectum that are affected, not my face.

These stigmas are just a few of the very important reasons we need to raise awareness for IBD.

What do you want other people to know about IBD?

So many things.

That at times it is a hard disease to live with. But along the way you will meet some pretty incredible people who will become some of your best friends who will be there for you no matter what. If you are able I highly recommend going to a retreat for people with IBD. It will be an amazing experience for you and you won’t regret it.

That this disease affects me in so many ways. And just because I don’t look sick, doesn’t mean that I’m well.

The more I work and the more I do the more tired I get. But it’s not the same type of tired as everyone else. I fight my body every single day. It’s exhausting.

Until next time!

I’m Going On A Diet, The Autoimmune Protocol Diet

My cat Kally helping me with research.

It’s so daunting to think of. The fact that I’m going to change my diet. But I’m tired of not feeling well. And food is one of the things that I can control.

I’m getting tired of not feeling well. And my doctors are kind of meh 🤷‍♂️, when it comes to what to do with me. I’m symptomatic, but I’m not in a flare, and my blood work is normal. So, what can you do? My rheumatologist wants my biologic to stay the same. And I’m currently on 3mg of budesonide. But I’m sure once it’s all gone, I’ll be done with it.

Which only leaves diet. Well, and exercise(yoga for me!). Along with seeing my chiropractor and acupuncturist. This past weekend when I was seeing my chiropractor and my acupuncturist they both mentioned diet to me when I told them what was going on. My body is having a lot of immune responses right now, and is very unhappy.

So now, I’m trying to find out what I can about the Autoimmune Protocol(AIP). And the Paleo diet. And it’s all a bit overwhelming and daunting. I’m hoping to get another book that helps to explain it more and what I need to do. Along with keeping a food journal again.

I know that my food tolerances have changed since the last time I did a food journal because I can eat cucumbers again. Which is weird, I know. But it’ll be good for me to figure out what foods I can eat and what I can’t.

The AIP will be slightly more complicated because I also suffer from fructose malabsorption. Which means I don’t process fructose very well. Fructose is found in a lot of plants, veggies and fruits so I will really have to double check everything when I start up this diet.

And that is where meal planning comes into play. I found a meal plan layout that I like. And I found out about a meal planning website that has a lot of the AIP meals on it and it will help you schedule everything. But it’s a paid service and I’m still deciding if I want to try it or not. I really wish they had a 7 day trail or something.

Until next time ✌

Explaining What Happens to People When They Lose Health Insurance is “Fearmongering”?

When does explaining what happens to people when they lose their health insurance turn into fearmongering?

Fearmongering according to the Oxford dictionary is:

The action of deliberately arousing public fear or alarm about a particular issue.

Now I don’t see it as fearmongering. It’s the honest truth that if someone with an incurable disease loses their health insurance could have a very hard life or possibly die of complications. I’ve seen people with IBD lose their health insurance and end up in the hospital multiple times due to flares and complications of IBD. Many patients need medications to stay out of the hospital to try and keep their IBD under control. And when you no longer have access to medications, things tend to not go well.

Now, my dad got accused of fearmongering after he said that he’s mad at Republicans for potentially getting rid of the ACA because I could have a very hard life or potentially die if I ever lose my health insurance. Which could very well happen. And with all of the uncertainty around healthcare and what some Republicans in office have said that they want to do it’s a real concern of mine, my husband, and my family.

What would happen to me if I got laid off and couldn’t get rehired again? What if my husbands insurance took too long to kick in or wouldn’t let me enroll until open enrollment? Or I can’t work anymore and have to go on disability?

I need my medications to stay functioning. And my medications are extremely expensive without health insurance. There is no way I would be able to afford then without it. And I am stuck with biologics.

This person my dad was talking to also said I needed to go get a job with insurance and stop expecting the government to take care of me. And I hate it when people make assumptions like this. I have a good job that has health insurance. And I will keep working until I can’t anymore. I also don’t expect the government to hold my hand and take care of everything. I want a fighting chance to LIVE. And that fighting chance to live is what I expect out of the government.

What I also don’t get is what is so fucking wrong with wanting the government to take care of the least of us? The people who need healthcare? But I have yet to hear of a way to convince someone to actually care about other people.