Autoimmune Protocol Diet: Week Three

Hello everyone.

This update is going to be a bit different. Because I had to stop the Autoimmune Protocol Diet unfortunately. My bowels this week pretty much had it. With this diet I was eating a lot of veggies and my colitis is currently not happy with that.

So Thursday I ended up having to take a sick day over this. I felt like my colon was in a vice grip and I had been having bowel issues for a couple of days so I just decided to stay home. I’m tired of making myself go to work when I don’t feel well. I also hadn’t been sleeping well due to joint pain. And Thursday was the day I decided I needed to get off of the AIP diet.

Now the plan is to try and redo the AIP diet in a couple of weeks. I feel like I need to do some soul searching and revisit the whole thing. It may mean introducing some OTC fiber tablets to my diet to help keep things regular. Or even slower diet changes.

But I felt that quitting the diet was the best option for me at this time. Going into a flare is not worth it. And I really feel that I was heading in that direction. My bowels were really starting to get torn up. In a way going back to my regular diet is going to be a test to see how that compares to what I was doing.

Until next time!
KenzieIBD

I Don’t Have Psoriasis….

… I have Eczema. I got diagnosed with it on March 8th. I have been having problems with my skin again. I had wanted my Rheumatologist to just prescribe me some steroid cream for it but he said that I needed to go see my dermatologist or my PCP for my skin problems.

So I went and saw my old dermatologist from a few years ago. The last time I saw him we kind of settled on Psoriasis without doing a skin biopsy. This time we decided to do a skin biopsy and it came back as Nummular Dermatitis(aka Eczema). This skin problem is probably going to be chronic due to my other immune problems. I’ve had this skin issue pop up a couple of times so I’m sure it’s safe to say it’s chronic.

I got some steroid cream for my skin and it helped a lot. The dry patches have already cleared up which makes me happy. I try to make sure to use lotion more on my skin so it doesn’t dry out. It doesn’t take much for it to get dried out anymore and get very irritated.

I’m hoping that this AIP diet helps some with my skin issues. But we will see. Also not sure when I’m supposed to go see my Dermatologist next? Guess we will see when I need a refill on my new medication.

Until next time!

KenzieIBD

Autoimmune Protocol Diet: Week Two

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Mug cake/brownie I made Friday night. It wasn’t too bad. A little dry for my taste. Next time I’m going to try cooking it in my microwave a shorter amount of time. I got the  recipe from Don’t Eat the Spatula.

Today marks my 14th day on the AIP diet. This diet has not been the easiest diet in the world. Some days are harder than others. What really makes it hard for me is the fact that I have to take my fructose malabsorption into account. And to take that into account that means I have to double check everything on ingredients lists for the AIP diet and compare them to the FODMAP list of foods I can and cannot eat.

I also really like potatoes, and dairy and gluten type foods. It’s been hard to cut them out. So far I’ve cut the gluten out and the night shades. I have not succeeded with the dairy quite yet. It’s probably going to be the hardest thing for me to cut out.

Over the last two weeks I’ve noticed that my joints are doing better. I don’t wake up with them as achy as I used too. My bowels on the other hand I’m not so sure on. I’ve had some weird stuff going on the last couple of weeks on and off. So we will just have to wait and see what happens with that.

One thing I learned this week is that I need to check my recipes in the morning to see what needs marinated for the evening meal. This would help with not eating so late in the day. Some nights this week I was eating dinner around 9pm. Which we all know isn’t the best thing for you.

I did not do as much Yoga this week as I had hoped to do. Kinda forgot about it until Tuesday night. And by the time I remembered it that day was a bit late to be doing Yoga. If I’m too active in the evenings(like working out) I’ve noticed that I have a hard time falling asleep. Which is another thing I need to work on anyway.

Another thing I had a hard lesson on this week was to make sure I eat lunch! Before going on the AIP diet I would quite often work through lunch and not eat anything until I got home. I did that on Friday and it was a huge mistake. I was so hungry when I got home and I was ready to throw the whole diet thing out the window and eat whatever I wanted too.

Hopefully next week goes better. But it’s currently Friday night and I have yet to do any meal planning for next week. Oops.

Until next time!

KenzieIBD

#FridayReads – The Curious Incident of the Dog in the Night by Mark Haddon

I have not read this book before. It is the book that my book club voted to read this month. The meeting is on Sunday and I still have like 100 pages to read! Which shouldn’t take me that long. I hope.

But so far it’s a very interesting book wrote from a completely different kind of voice that I haven’t seen before. It’s pretty interesting.

#IBDAdvocacyTag

What form of IBD do you have?

On paper I have Ulcerative Colitis but my doctor has mentioned a couple of times that I probably have Inderterminate Colitis. So that’s pretty much what I identify as. There also isn’t a Inderterminate Colitis diagnostic code so that doesn’t help either. There was also that one time I had a pathology report come back and say Crohn’s Disease 🤷‍♀️ And the Humira is currently working fairly well and there is mucosal healing in my colon and rectum, so it’s hard to say for sure which IBD I have.

But at the same time there is a lot of speculation in the GI field that IBD is a spectrum disease. The most important thing is that I like my GI doctor, the medications are working and we know where my disease is most active.

Why is IBD advocacy so important?

So people know that they are not alone. Having a chronic disease can feel so isolating when you are first diagnosed. It is so helpful to meet people who know what you’re going through. And can help you navigate a very hard time in your life.

Describe a socially awkward moment with IBD.

Oh where to begin?

There was this one time on Facebook that I got told that I needed to read the healing word of God and pray more to cure myself.

Which was extremely frustrating because I’m not an avid Christian (I’m more or less agnostic) and my faith has nothing to do with my illness. Shit happens and I somehow got this incurable disease through no fault of my own. And praying to God to get healed isn’t going to cure me. Some scientist some day will find a cure and that will be what I need. Will it be through delivine intervetion? Who knows!

But telling someone that they need to read the bible more and pray more just blames the person who got ill and victimizes them. People who are chronically ill need compassion and empathy. Not someone to tell them where they went wrong in life.

What common stigma do you run into?

That it’s not that serious of a disease. That it just makes you poop. That it’s just a stomach ache and some diarrhea. That I don’t look sick.

All of these stigmas are so incredibly frustrating. There are people who have died from complications of this disease. IBD is so much more than pooping and a stomach ache. And I don’t look sick because I’m good at faking being well. And it’s my colon and rectum that are affected, not my face.

These stigmas are just a few of the very important reasons we need to raise awareness for IBD.

What do you want other people to know about IBD?

So many things.

That at times it is a hard disease to live with. But along the way you will meet some pretty incredible people who will become some of your best friends who will be there for you no matter what. If you are able I highly recommend going to a retreat for people with IBD. It will be an amazing experience for you and you won’t regret it.

That this disease affects me in so many ways. And just because I don’t look sick, doesn’t mean that I’m well.

The more I work and the more I do the more tired I get. But it’s not the same type of tired as everyone else. I fight my body every single day. It’s exhausting.

Until next time!