Tag: CCFA

Health Tagline

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WEGO Health: Give yourself, or your patient experience a tagline. Grab attention with your slogan. Make sure it’s catchy!

Giving myself and my patient experience a tagline is not an easy thing. It’s not simple to sum it up. I think the best words that sum everything up is “Be Brave.”

I first saw this on the Bravelets website. I actually own this bracelet. $10 will be donated to the CCFA if you buy one from this site. I think it’s the best tagline for me to have. This disease can be terrifying at times and I have to remind myself to Be Brave.

Be Brave

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I got my first Bravelet this week. If you haven’t heard of it before it’s a company that makes Be Brave jewlery that supports many different causes. The one I got my Bravelet for was the Crohn’s and Colitis Foundation of America. $10 of your purchase goes to the cause of your choice.

Even if money wasn’t donated to a cause(I’m glad that part of it is) I probably still would of gotten one if I had seen one. Be Brave really speaks to me. Be Brave. It’s something I need to remind myself to do. It can be hard to remember to Be Brave with everything that is going on in my life. Now all I have to do is look down at the bracelet on my wrist for a reminder. My tattoo is also a reminder to Be Brave and that I’m not my disease but I have to have my tattoos covered up at work 😦

 

“There is something you must always remember: You are braver than you believe, stronger than you seem, and smarter than you think. But the most important thing is, even if we’re apart… I’ll always be with you.” -Christopher Robin to Winnie the Pooh

Second Opinion Time

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I finally decided to get a second opinion on my IBD. Especially since it’s clear cut as to whether I have Crohn’s or Ulcerative Colitis(UC). I tried to make the appointment today with the doctor that was recommended by my boyfriend’s coworker but they weren’t in the office today. It kind of drives me crazy how some doctors have Friday off. But at the same time I’m a little jealous because I’d love to have to only work 4 days a week! I plan on calling Monday and seeing if I can get it. Hopefully they’ll do it. There aren’t a whole lot of GI practices around here and the next closest one would be 1.5-3 hrs away 😦

Hopefully they can get me in soon. I’ll have to work it in around my work schedule. Or I may just schedule the appt for when they can get me in and just say screw it. My health right now I feel is more important than my job because I can’t do my job without my health. And that is becoming very evident again. My symptoms are the worse in the morning and it can be hard to get going when I’m feeling absolutely horrible. Especially when that horrible feeling chains you to the toilet.

I also realized this week that I don’t like it when people tell me that I look healthy when I say I haven’t been feeling well and that my symptoms are getting worse again. If I could make you feel what I feel I’m pretty sure you wouldn’t say that I’m healthy. Or maybe I should just start carrying around pictures of what my toilet looks like after I’m done with it. They probably wouldn’t say I’m healthy then either. I know it’s an invisible disease but sheesh. My immune system is attaching my body. There isn’t anything that is healthy about that. I’m sure as time goes on I’ll have a list of things that I hate having people tell me that is related to my IBD.

The CCFA does not have any support groups in the area where I’m at. The closest one is now about 3 hrs away. I got some information for the chapter that my hometown is located under and they said that I could volunteer to start a support group since there isn’t one in the area. I would have to go through some training and an interview process before it got started. The CCFA would help out with resources, finding a meeting place and letting the local GI practices know about it. I’m just not sure if it’s something I want to be in charge of at this point. It’s definitely something worth considering though. If I can get in with the new GI I’ll have to ask him if he knows of any support groups in the area before I make up my mind about it.

My First CCFA Online Support Group Chat

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I had my first CCFA online support group chat tonight. It was really nice to be able to talk to people who can relate to what I’m going through. This has me motivated to find a local support group where I live. I wish that there was a local CCFA chapter in my area but the closest one is around 300 miles away 😦

If you’re interested in the CCFA online support group they already have a March session. It’s free to do. You just need to create an account with the CCFA. For more info click here. It’s definitely well worth it. Each session is an hour and a half and we talked about so many different things. It was just really nice.