Lasik Eye Surgery – Still a Possibility?

I finally have an answer to whether or not I can get Lasik eye surgery done. And the answer is that I can get it as long as my health has been stable for at least 6 months. I feel like this is a tricky question because what does stable mean? Does it mean that my bloodwork is stable? I have no symptoms? But I have time at least to get that figured out.

I’m not sure at this point if I still want the surgery or not. I’m glad to know that it’s an option at least. But this type of surgery is considered cosmetic so it’s something that I will have to pay out of pocket for. Lasik is not cheap either.

It’s something I’m really going to have to consider if I want to go through with this or not. I don’t see it happening anytime in the near future. I have some other things I’d like to get done in life before a laser is taken to my eyeballs.

Until next time!
KenzieIBD

#IBDAdvocacyTag

What form of IBD do you have?

On paper I have Ulcerative Colitis but my doctor has mentioned a couple of times that I probably have Inderterminate Colitis. So that’s pretty much what I identify as. There also isn’t a Inderterminate Colitis diagnostic code so that doesn’t help either. There was also that one time I had a pathology report come back and say Crohn’s Disease 🤷‍♀️ And the Humira is currently working fairly well and there is mucosal healing in my colon and rectum, so it’s hard to say for sure which IBD I have.

But at the same time there is a lot of speculation in the GI field that IBD is a spectrum disease. The most important thing is that I like my GI doctor, the medications are working and we know where my disease is most active.

Why is IBD advocacy so important?

So people know that they are not alone. Having a chronic disease can feel so isolating when you are first diagnosed. It is so helpful to meet people who know what you’re going through. And can help you navigate a very hard time in your life.

Describe a socially awkward moment with IBD.

Oh where to begin?

There was this one time on Facebook that I got told that I needed to read the healing word of God and pray more to cure myself.

Which was extremely frustrating because I’m not an avid Christian (I’m more or less agnostic) and my faith has nothing to do with my illness. Shit happens and I somehow got this incurable disease through no fault of my own. And praying to God to get healed isn’t going to cure me. Some scientist some day will find a cure and that will be what I need. Will it be through delivine intervetion? Who knows!

But telling someone that they need to read the bible more and pray more just blames the person who got ill and victimizes them. People who are chronically ill need compassion and empathy. Not someone to tell them where they went wrong in life.

What common stigma do you run into?

That it’s not that serious of a disease. That it just makes you poop. That it’s just a stomach ache and some diarrhea. That I don’t look sick.

All of these stigmas are so incredibly frustrating. There are people who have died from complications of this disease. IBD is so much more than pooping and a stomach ache. And I don’t look sick because I’m good at faking being well. And it’s my colon and rectum that are affected, not my face.

These stigmas are just a few of the very important reasons we need to raise awareness for IBD.

What do you want other people to know about IBD?

So many things.

That at times it is a hard disease to live with. But along the way you will meet some pretty incredible people who will become some of your best friends who will be there for you no matter what. If you are able I highly recommend going to a retreat for people with IBD. It will be an amazing experience for you and you won’t regret it.

That this disease affects me in so many ways. And just because I don’t look sick, doesn’t mean that I’m well.

The more I work and the more I do the more tired I get. But it’s not the same type of tired as everyone else. I fight my body every single day. It’s exhausting.

Until next time!

Explaining What Happens to People When They Lose Health Insurance is “Fearmongering”?

When does explaining what happens to people when they lose their health insurance turn into fearmongering?

Fearmongering according to the Oxford dictionary is:

The action of deliberately arousing public fear or alarm about a particular issue.

Now I don’t see it as fearmongering. It’s the honest truth that if someone with an incurable disease loses their health insurance could have a very hard life or possibly die of complications. I’ve seen people with IBD lose their health insurance and end up in the hospital multiple times due to flares and complications of IBD. Many patients need medications to stay out of the hospital to try and keep their IBD under control. And when you no longer have access to medications, things tend to not go well.

Now, my dad got accused of fearmongering after he said that he’s mad at Republicans for potentially getting rid of the ACA because I could have a very hard life or potentially die if I ever lose my health insurance. Which could very well happen. And with all of the uncertainty around healthcare and what some Republicans in office have said that they want to do it’s a real concern of mine, my husband, and my family.

What would happen to me if I got laid off and couldn’t get rehired again? What if my husbands insurance took too long to kick in or wouldn’t let me enroll until open enrollment? Or I can’t work anymore and have to go on disability?

I need my medications to stay functioning. And my medications are extremely expensive without health insurance. There is no way I would be able to afford then without it. And I am stuck with biologics.

This person my dad was talking to also said I needed to go get a job with insurance and stop expecting the government to take care of me. And I hate it when people make assumptions like this. I have a good job that has health insurance. And I will keep working until I can’t anymore. I also don’t expect the government to hold my hand and take care of everything. I want a fighting chance to LIVE. And that fighting chance to live is what I expect out of the government.

What I also don’t get is what is so fucking wrong with wanting the government to take care of the least of us? The people who need healthcare? But I have yet to hear of a way to convince someone to actually care about other people.

#MotivationMonday

Your mistakes don't define you

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#MotivationMonday

"Sometimes the strength within you is not a big fiery flame for all to see, it is just a tiny spark that whispers ever so softly 'You got this. Keep going.'"

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