The last 6 weeks or so have been pretty rough for me. Between going through a very tough day at work and then working 12 days in a row two different times in the last month. And then getting sick and having to go out of town for work.
I’m struggling to get myself back on track. I’ve been wanting to do Yoga more to help out with the weight loss but with working so much and getting sick I’ve had a hard time keeping up with it. I’ve also been wanting to try a new diet and I’ve had to put that off for several weeks unfortunately.
Hopefully work will slow down so I can get my life back on track. My house is a disaster and I’ve been too tired to do much. But this weekend I’ve finally been able to start getting myself straightened out. I got part of my kitchen cleaned. I also started the AIP diet today. I’ve been wanting to start this diet for a month or two, so I’m pretty excited to see how it goes!
All in all, I have to remember that this is going to be a process and that I need to take life a day at a time.
Traveling with IBD isn’t always the easiest thing to do. I’ve had to travel to the other side of the country a few times since being diagnosed with IBD and I’m slowly getting the hang of it. I’ve started to make sure that when I book my flights that I either have an aisle seat or at least a middle seat. I used to always get a window seat but I don’t want to have to go through that many people if I have to go to the bathroom. I also carry extra underwear in my book bag just in case.
For my checked luggage there is a list of things that I make sure to back:
- Calmoseptine Ointment
- Panty Liners
- Wet Wipes
- Extra underwear
- Angel Baby Bottom Balm
Eating while traveling isn’t the easiest thing in the world. There are times I have a hard time figuring out what to eat that isn’t going to upset my stomach. Especially with having fructose malabsorption. I tend to stick to soups and salads if I’m traveling to the training academy for work. For dinner I just try and read the menu well and try to figure out what to eat that won’t give me an upset stomach. My problem is normally getting abdominal cramping when food doesn’t sit well.
The last couple of weeks I’ve been pretty busy. I was on vacation for a week while my Mom and Nana visited. I had such a great time having them visit. We got to do all sorts of stuff. Like go to Crater Lake and to the California coast. I got to learn a new card game from my Nana and my mom got to help me work on my yard. We made two new flowerbeds. One that has wildflowers in it for the birds and the other has a Honey Sickle vine in it.
My mom also got me a bird bath! It’s been cool to see the birds use it. I’m sure they’re grateful for it. It’s been 100+ a lot the last few weeks. I’m ready for some cooler weather to be here.
Jäger also had surgery this week to have some cysts on his head removed. We aren’t sure what caused them but he had a scar where the cysts were forming. We didn’t know he had a scar there. We got him from one of the rescues in the area. He’s doing good today but it’ll take him a while to get used to the cone. He has to wear it for the next two weeks.
My fatigue is coming back pretty bad this week. It’s hard to get stuff done that I want to get done. I’m only able to do things it seems like every other day. I’ve been trying to get my front flower bed planted but it’s taking a lot longer than I had planned to get it done because I have to have a recovery day after I work on it. It’s also affecting the other stuff I need to get done. Like chores around the house. I hate it. I wish it was possible to just recharge myself like you do a battery 😦
I don’t know if the fatigue is because I’m going into a flare, or I’m coming out of one, or if it’s happening just because. The only thing I can really do is wait and see what happens with my symptoms over the next week or so. I could also just be over doing it. But it sucks to think that. I never really had to ever worry about over doing it for the day until recently. At 25, I shouldn’t have to be worrying about stuff like that. I shouldn’t have to be worrying about any of this shit. Life can be so fucking unfair sometimes.
I added up my medical bills that I’ve paid so far this year and I died a little inside. I didn’t realize that it was that much 😦 And I still have several hundred dollars worth that still need paid. Then there’s all the doctors appointments and procedures that I haven’t had yet. I also don’t know how much the Cimzia will cost yet. I also found out yesterday that for the IRS stuff for medical bills went from being 7.5% of your adjusted gross income to 10%. Which to me is a load of bullshit. It would be nice to get some money back but who knows if I will qualify now.
I decided to join a book club this week. They meet once a month to discuss the book for that month. I’m pretty excited about it. I’m looking forward to meeting new people and possibly making some new friends. I hope it works out well!
“It’s a common belief that positive thinking leads to a happier healthier life. As children we are told to smile, be cheerful, and put on a happy face. As adults we are told to look on the bright side, to make lemonade, and see glasses as half full. Sometimes reality can get in the way of our ability to act the happy part though. Your hope can fail, boyfriends can cheat, friends can disappoint. It’s in these moments, when you just want to get real, drop the act, and be your true scared unhappy self.” ~Grey’s Anatomy
I got my first Bravelet this week. If you haven’t heard of it before it’s a company that makes Be Brave jewlery that supports many different causes. The one I got my Bravelet for was the Crohn’s and Colitis Foundation of America. $10 of your purchase goes to the cause of your choice.
Even if money wasn’t donated to a cause(I’m glad that part of it is) I probably still would of gotten one if I had seen one. Be Brave really speaks to me. Be Brave. It’s something I need to remind myself to do. It can be hard to remember to Be Brave with everything that is going on in my life. Now all I have to do is look down at the bracelet on my wrist for a reminder. My tattoo is also a reminder to Be Brave and that I’m not my disease but I have to have my tattoos covered up at work 😦
“There is something you must always remember: You are braver than you believe, stronger than you seem, and smarter than you think. But the most important thing is, even if we’re apart… I’ll always be with you.” -Christopher Robin to Winnie the Pooh