Autoimmune Protocol Diet: Week Two

20180323_191213285142493.jpg
Mug cake/brownie I made Friday night. It wasn’t too bad. A little dry for my taste. Next time I’m going to try cooking it in my microwave a shorter amount of time. I got the  recipe from Don’t Eat the Spatula.

Today marks my 14th day on the AIP diet. This diet has not been the easiest diet in the world. Some days are harder than others. What really makes it hard for me is the fact that I have to take my fructose malabsorption into account. And to take that into account that means I have to double check everything on ingredients lists for the AIP diet and compare them to the FODMAP list of foods I can and cannot eat.

I also really like potatoes, and dairy and gluten type foods. It’s been hard to cut them out. So far I’ve cut the gluten out and the night shades. I have not succeeded with the dairy quite yet. It’s probably going to be the hardest thing for me to cut out.

Over the last two weeks I’ve noticed that my joints are doing better. I don’t wake up with them as achy as I used too. My bowels on the other hand I’m not so sure on. I’ve had some weird stuff going on the last couple of weeks on and off. So we will just have to wait and see what happens with that.

One thing I learned this week is that I need to check my recipes in the morning to see what needs marinated for the evening meal. This would help with not eating so late in the day. Some nights this week I was eating dinner around 9pm. Which we all know isn’t the best thing for you.

I did not do as much Yoga this week as I had hoped to do. Kinda forgot about it until Tuesday night. And by the time I remembered it that day was a bit late to be doing Yoga. If I’m too active in the evenings(like working out) I’ve noticed that I have a hard time falling asleep. Which is another thing I need to work on anyway.

Another thing I had a hard lesson on this week was to make sure I eat lunch! Before going on the AIP diet I would quite often work through lunch and not eat anything until I got home. I did that on Friday and it was a huge mistake. I was so hungry when I got home and I was ready to throw the whole diet thing out the window and eat whatever I wanted too.

Hopefully next week goes better. But it’s currently Friday night and I have yet to do any meal planning for next week. Oops.

Until next time!

KenzieIBD

Have Food Allergies/Intolerances/Diet Restrictions? Check Out the DineSafe App!

2016-03-13 17.08.39

Disclosure: “This is a sponsored post for DineSafe App. I have been compensated through the Chronic Illness Bloggers network. All opinions remain my own and I was in no way influenced by the company.”

 

DineSafe is a new app that recently come out to help people find food they can eat at restaurants, even if they have very specific diet restrictions. It is a free app to use for both the user and the restaurant. It is currently available on Android and iPhones. It works off of your phone’s GPS to find the restaurants closest to you who have signed up for DineSafe. I love that it works off of GPS. This feature will be very handy for me especially when I travel. It would be nice to know what restaurants in the area I’m staying have food that I can eat before I get there or have to spend time trying to find their menu online.

This app will allow people to find what foods they can and cannot eat so they don’t always have to download nutritional menus for the places that they want to eat. I know I’ve had to do that in the past for places I’ve wanted to go to. Like Subway or McDonald’s. Although, getting that kind of information from a restaurant isn’t always easy. And it can be time consuming. This is where DineSafe steps in.

My diet restrictions are for fructose malabsorption. Currently there isn’t an option for fructose(I really hope that there is soon!) but I can say that I can’t have tomatoes, onions and MSG. They also have some of the other common allergies listed like milk, gluten, shellfish, peanuts, ect.

They also have eight different diets you can choose from:

2016-03-13 17.11.36
DineSafe Diet Restrictions

After you have chosen what your allergen and diet restrictions are you can then start looking for restaurants in your area. Currently there aren’t any restaurants where I live that use this app but I was able to see how it would work by looking up a couple of restaurants in Florida and Oregon.

As you can see it makes it very easy to see what you can and can’t have. The color codes also let you see if the dish can be modified so you can still have it. If the item isn’t highlighted with red or yellow it means that it contains none of the restrictions that you have listed. Yellow means that they can take the item that you can’t have out(ie, tomato or onion). The red means that the ingredient in the dish, like tomato, can’t be taken out.

A new feature that came out this week is that you can petition and endorse restaurants in your area to join DineSafe. I have created petitions for two restaurants in my area. I hope that they join soon! I have a lot of high hopes for this app and I feel that it would be an amazing tool for people to use. I highly encourage people to download it and use it in their area even if there aren’t any restaurants currently using it. You can still create petitions to try and encourage them to sign up. The more of us that use it the greater the success this app will be.

World Health Day #HAWMC

WEGO Health: April 7th is World Health Day – so let’s talk about daily nutrition and diet. After your diagnosis, did you alter your diet or health routine? If so, how? How do you maintain a healthy regiment?

After I got diagnosed with a fructose malabsorption I definitely changed my diet. There are a lot of foods that have fructose in them. Like pop, honey, veggies, fruits, fruit juices, cereals, yogurt, bread, ect. I had to start reading labels on everything I bought. Avoiding fructose definitely helps a lot.

Over the years I’ve tried going dairy free and gluten free. Neither of which helped. The gluten free might work now that I know I have a fructose malabsorption. I’ve been suggested vegetarian diets, vegan diets, Paleo and low FODMAP diets. The FODMAP diet was suggested by a dietitian and the Paleo diet was suggested by a GI at my current practice.

I’m looking more into the low FODMAP diet. I really think that this would be my best option. I have kept a food journal in the past to help me to figure out food to eat and that did help me figure out a few things. I started keeping my food journal in Evernote this week. I really want to be better at keeping track of food and my symptoms.

And I try to maintain a healthy regiment by doing homemade whenever I can. I try to not eat a whole lot of processed foods but that doesn’t always happen. For a while I was counting calories using My Fitness Pal but I haven’t really been doing that for a while. I’m working on being more active by walking my dogs more and going to the gym. I also have a Fitbit and try to meet my daily step goal. Some days are better than others though!

I’m Getting a New GI Doctor & Fatigue

I drove 3 hours from my home today to meet with a new GI doctor. The lady I met with is pretty cool(I’ll refer to her as Dr. S, she’s a nurse practitioner). She spent about an hour with me and M today working on finding out my history and answering any questions we had.

She was surprised that my doctors hadn’t tested me for Celiac’s Disease. I’m getting blood work done on that and she’s also checking me for an iron deficiency along with doing another CBC panel. She was also surprised with the fact that my current GI doctor hadn’t ran any recent CBCs after my flare up from a couple of weeks ago. I also thought that was weird. You’d think after how high my white blood cell count was that they’d want to see if it was going down or staying the same. Dr. S also asked if they have done any CT scans, any small bowel studies, or if they’ve done an endoscopy. Which they haven’t. So I may be getting one(or all) of those in the future.

While I was there Dr. S was able to go and talk to one of the other doctors at the office. Her college felt that I have Indeterminate Colitis. Dr. S did say that the next step for me is to go on the biologics but that they don’t normally use Cimzia out here(I live on the West Coast) because most insurance companies out here don’t approve it for some reason. I told her my doctors chose that because it’s a class B drug which means it won’t affect a fetus when I decide to start having babies.

Dr. S seems pretty invested in the whole IBD world. She went over the Paleo and FODMAP diets with me while I was there. She really wants me to try them so I may do the FODMAP diet first. I already have a book for it by Dr. Shepard. She said that it will probably help with the bloating. Which I get a lot of unfortunately. So I have some research to do over the next week or so! She also wants me to do an elimination diet for lactose but I’d rather just do a hydrogen breath test for it so I will be calling my insurance company to see if I can find an in network lab that they’ll pay for.

I was also able to get a restroom access card while I was there. They have them for the state that I’m in and I was able to get one signed while I was there which was pretty awesome. I’m not sure why my old GI practice never did that. So now I have four different ones! I’m going to have to look into getting it laminated though since it’s just on a normal piece of paper. Or maybe I’ll just use some packing tape.

I decided to switch to Dr. S because she took so much time with us today. And is running some tests that my doctors should of already ran. I also feel like this is the best decision for myself right now. It sucks that they’re three hours away one way but I’m hoping that I can get a better level of care there. I feel like my current/old GI practice could of done more to rule out things that could potentially be wrong with me. So, we shall see how the next few months go. It’ll be an all day thing to see her but I’m hoping that in the end it’s worth it. If not, I can always try and find another GI doctor.

I still haven’t started the Cimzia so I need to call and find out what is going on with that. Hopefully nothing too serious. I also have no idea what is going on with the home health nurse so I also need to check into that. My symptoms have calmed down after I went off the Imuran but that doesn’t mean that my colon doesn’t have any inflammation in it currently.

The fatigue has been pretty bad the last few weeks. It can be so hard to do what I need/want to do every day. Many days I have to decide what I’m doing for the day and only do those things. I just don’t have the energy. Maybe the labs that Dr. S  is running will show something that can be fixed. I know that anemia can cause fatigue and I’ve been wondering if that’s what’s wrong with me. Especially with the bleeding I’ve been having on and off the last few months.

There’s an article/blog post that explains the fatigue that I deal with really well. It’s called The Spoon Theory. And it’s just not me who suffers with chronic fatigue either. Anyone with IBD does and many people who have auto immune disorders do. Along with people who have chronic diseases. So it’s just something that’s good to keep in mind when you know someone who suffers from stuff like that. It’s extremely hard to deal with and to explain to people. So if you ever hear me say that “I’m running low on spoons,” this is what I’m talking about.