Possible Psoriasis Diganosis

I had an appointment with my new dermatologist today. After three months of having weird itchy dry rashes on my face I finally made it in to see one today. I will call him Dr. G.

Dr. G thinks that I probably have Psoriasis although it could be several things. Like Eczema, Rosea, ect. It could be an after effect of being on steroids for 10 months. It may be something that my body was able to keep under control until I went on steroids. And then the steroids kept it under control and now it’s fully out of control.

Unfortunately both Ulcerative Colitis and Crohns Disease have skin problems related to them. Psoriasis is one of these skin problems. Over the next week I have to let my face go into a full flare. I’ve been putting topical steroids on it to make it go away but because my face isn’t in a full flare right now I have to let it go so they can get a better idea of what is going on. The weird thing is, is that the rash goes away in between Humira shots and Humira is used to treat Psoriasis which is another clue as to what we might be dealing with.

If I do have Psoriasis it will be another chronic condition that I will be dealing with for the rest of my life. Treatment of it deals with bologics like I’m already on and topical steroids. I’d be on the topical steroids for two weeks and then have a week long “steroid holiday” so that the steroids don’t thin my skin too much. Which is a side effect of being on them.

Dr. G also apologized to me today for the cards I’ve been dealt in life when it comes to my health. It’s the first time I’ve had a doctor do that. Although Dr. O has said that she’s sorry before when I told her that I had IBD. But I’ve also known her for a while. It’s the first time a new doctor has said sorry.

It just sucks. It’s one more thing to deal with along with my IBD stuff.

Rashes & Welts

I saw my PCP today. She thinks that the rash and welts that I have are probably related to my IBD and extraintestional manifestations of it. But according to the National Library of Health, psoriasis is an extraintestinal manifestation of IBD. So, who knows what exactly is going on.

Now I’m on two different strengths of topical steroids to help control the rash and welts. I’m also waiting on getting a referral to see a dermatologist. My PCP said that they’re normally booked out several months in advance. Which sucks. My PCP said that I can cancel the appointment if we get it under control before that but I have a feeling that it won’t be. And I have no interest in having to constantly be putting steroids on my skin.

It’s also a bit depressing to think about. My invisible illness isn’t so invisible anymore. The welts are pretty painful and there was a point where they were making me look like a junkie. And where most of them are showing up is of course on my arm with my new tattoo. I had a new one show up on my collar bone today. And one on my elbow yesterday.

I really hope that they don’t show up on my face or hands. That would be horrible. My hands especially since I work with my hands. I need my hands to make a living.

What I really want right now is to go more than 6 months without something being wrong with me. The last year has been really rough. I got diagnosed with an incurable autoimmune disease. I’ve been hospitalized because of a severe reaction to a medication. Had two different colonoscopies. I was on steroids for 10 months.

I’ve been so exhausted that it was all I could do to get through work. I couldn’t keep up with the chores around the house or have enough energy to go grocery shopping. Luckily a friend came over and helped me clean my house some. I don’t know what I would of done without her.

I’ve been on 5 different medications to treat my IBD and the only one that is working so far(besides steroids) is Humira. I’ve had so many blood draws done and had iron deficiency anemia at one point. Now I have a vitamin D deficiency. I’ve seen three different GI doctors and my current one is now three hours away. I’ve had my diagnosis changed from Ulcerative Colitis to Indeterminate Colitis.

I’ve had to spend a few thousand dollars in medical bills this year along with taking time off of work. Luckily with work I have unlimited sick days but I can’t take off more than 3 in a row before I have to go on short term disability. But the amount in medical bills suck. And I probably won’t be able to really claim any of it on my taxes because of what the income to medical bill ratio is.

And then I’ve dealt with bouts of depression. Which isn’t fun either. There’s times that you get caught up in thinking that this is what you have to look forward to the rest of your life. Countless medications, bathroom trips, shitting yourself, chronic fatigue and constantly battling your body to just live your day to day live.

There’s days that all I want to do is just scream and cry but that won’t get me anywhere. The only thing I can keep doing is trying to take life a day at a time. Be Brave. And remind myself that I am not my disease, no matter how much I feel like I am.